The Real Neat Blog Award

I was nominated for The Real Neat Blog Award by my fellow blogger Lisa, who is the author of the lovely blog, BLOOMIN’ UTERUS.

Thank you Lisa for this nomination.  I hope everyone will check out her fantastic blog. Continue reading

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I LOVE this! It is a perfect follow-up to the broken parts of myself that were expressed in my blog post yesterday. I am trying to teach myself to adapt to the limitations of chronic illness and pain and I WILL learn to weave my own parachute out of those broken pieces. It may take time, some trial and error, and a lot of baby steps but I believe we can all get there if we set our minds to it.

Bloomin' Uterus

Parasail_lahaina

We made it through another week! Yay!

Today’s Feel Good Friday quote is by American poet, William Stafford:

“I have woven a parachute out of everything broken.”

I absolutely loved the visuals that came when I read this one.  So many times we allow the brokenness of our dreams, expectations, desires, and life to bury us.  We need to embrace the suck, stand back up, and go.  Use it to soften the landing, propel you forward, to go places, to better ourselves, and to help others.

Not strong enough to build your own parachute?  Find a friend who is going through the same thing.  Join a support group.  Know that you are not alone in your sorrow or suffering.  Together you can weave a beautiful tapestry and a strong parachute.

May you have a wonderful weekend.

Yours, Lisa

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Blogging 101 : Introduce Yourself!

Hi everyone!  I am taking The Daily Post’s Blogging University courses somewhat in reverse order.  I completed Blogging 201 last week and today I’m excited to begin Blogging 101.

Please bear with me as I participate in another Blogging U course, as I will likely publish posts as a part of some assignments.  While they may not always be directly related to my usual topic, hopefully they will be educational and/or interesting to those who have a desire to learn more about blogging.  At the very least, they will help me learn how to become a better blogger, which is a “win-win” situation for everyone.

 Today’s assignment: write and publish a “who I am and why I’m here” post.

I still consider my blog relatively new, but I am amazed and delighted at how quickly it seems to be evolving each day.  I’ve already learned a lot and gained quite a few awesome followers, so I am very happy with its progress.

The main topic of my blog is chronic illness and chronic pain.  The conditions that I will concentrate on the most are those which are not visible to the naked eye, which is why I titled the blog Invisible Pain Warriors.

I write about the daily struggles of living with chronic illness and chronic pain, occasionally touching on infertility, how these issues affect my husband and I in our daily lives, how other are affected, tips on how to deal with various issues associated with chronic illness and chronic pain, along with our challenges and triumphs along the way. Continue reading

Endometriosis Awareness Month & The Birth of a Blog

In honor of Endometriosis Awareness Month, I have decided to try my hand at blogging.  I follow a number of other people’s blogs and have often considered starting one myself, but have been unsure if I would be able to devote the time and energy necessary to keep it updated with relevant and interesting posts.  Well, I’m done thinking about it and I’m going to give it my best shot.

I titled the blog Invisible Pain Warriors because that is what I consider my husband and I to be.  I have suffered from Endometriosis and PCOS (Polycystic Ovarian Syndrome) for 20 years and was diagnosed 5 years ago and the age of 31, during a diagnostic laparoscopy to investigate the cause of my chronic abdominal pain and infertility.  Since that time, I have experienced a roller-coaster of symptoms, had a 2nd laparoscopic surgery to remove more Endometriosis and pelvic adhesions, and over the past 6-8 months have suffered a significant increase in the severity and frequency of my Endo-related pain.

I also have another source of chronic pain, which isn’t as easily identified, diagnosed, or explained.  I usually refer to it as a “chronic facial pain syndrome” but it has been diagnosed as a number of things, including Trigeminal Neuralgia, Atypical Trigeminal Neuralgia, Atypical Facial Pain, TMJ, and even just a headache.  While no one is quite sure what it is or how to fix it, it has had a dramatic effect on my daily quality of life and is something that I struggle with each and every day.

My husband Billy suffers from severe constant chronic pain resulting from what appears to have been a failed anterior cervical fusion surgery, which took place in December 2012.  He does not spend much time on the internet and will likely never add to this blog but his battle with chronic pain is something that I will likely write about as it is one of the most difficult and cruel things that either of us have ever witnessed or experienced.

We have both spent many years, thousands upon thousands of dollars, and expended endless time and energy searching for help and resolutions to our pain, but as of yet the medical community has done very little to help us (not for complete lack of trying), short of providing the minimum amount of pain medication necessary for us to function at any capacity.

This is a short summary of a very long story that I will likely elaborate more on in future posts.  I consider us warriors, fighting an invisible battle against a monster that no one can see.  I hope that sharing our story, our struggles, and triumphs along the way can help others who are fighting similar battles to know that they are not alone.