How to manage having too much to do (with chronic pain)

I love this post! It resonates with me on so many levels. I really admire how quickly this Endo Sister has managed to work through some of the hidden (and some more obvious) struggles of chronic illness. I received my official Dx of Endometriosis at about the same time (maybe a year or so earlier) but it took a 2nd source of chronic pain (Atypical Trigeminal Neuralgia) and my husband’s cervical spine injury for me to really start to acknowledge, delve into and research our limitations and start searching for answers. I think denial took over in the early years after my Endo Dx, as well as my doctors failing to explain to me that the disease has no cure.

I successfully made it through this past work week without using any sick leave, missing any days, coming in late, or adjusting my schedule for doctor appointments, etc. This is a BIG accomplishment for me, but may seem trivial to healthy peers. In doing so, my body has been left in a terribly drained state. The dreaded Endo Fatigue has hit me hard today and I feel as though I’m walking through quick sand. I over-did things this past week and I am paying the price now. I need to learn how to better manage what little energy that I do have and this post reminded me of that fact.

I also thoroughly agree with the importance of managing our mental health along with our physical health as part of our pain management program. I am always shocked at how my (and my hubby’s) pain specialist ignores this critical element which impacts us both so much. I am definitely going to check out the link provided in this post to see if there are any sources of help available to US citizens. ❤

Endohope

The differences between chronic and acute illness

On any given day I always have too much to do. There are more things to accomplish than I have hours of the day.

This was a problem for me before I got sick, but well people aren’t always forgiving about illness, but doubly so when they want work from you or expect you to meet certain commitments. People get stressed themselves and their expectations and demands grow. Basically people forget you’re ill and expect you to do as much as everyone else.

Being busy with a chronic illness is a nightmare. You have half (or less than) the energy of other people. You’re in pain all the time and you have to manage everything that life requires.

There’s no perfect solution to being busy and stressed, but the being busy while ill part? I might be able to help a little.

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Endometriosis: what does the pain feel like?

This is a great post! Such an accurate and very relatable explanation of this disease and how it feels to live with it. 💞

Endohope

Chronic pain is the largest aspect of living with endometriosis. Someone might know what endometriosis is, but factual discussion about endometriosis tends to leave out the very personal story about how it feels.

Endometriosis pain is so subjective. It feels different for every woman, but we shouldn’t step away from trying to describe the experience of it in our own words.

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The War on Pain Medicine

This topic is very close to home for me and I strongly believe that the “war on drugs” has created a cruel, dangerous, and unnecessary epidemic of untreated and under-treated pain.

My husband and I lost a dear friend this weekend. He was a double amputee, suffering a horrendous infection due to diabetes complications. Even though he was in the hospital, in ICU, and everyone knew the end of his life was near, his pain was tragically under-treated to the point where he lie shaking, helpless, and unable to speak. Instead of treating him with the compassion that any living being deserves, they strapped him to his hospital bed, likely in an attempt to prevent self-harm, and forced him to suffer an agonizing death.

These unspeakable tragedies happen every day, as the DEA has instilled such fear in doctors and medical professionals, that many are now unwilling to provide adequate pain medication to those who desperately need it.

Those of us who live with chronic daily pain live in fear that the medications we need to achieve even a minimal quality of life will be taken away. This is wrong. It is unethical. I don’t understand how a doctor can take an oath to “do no harm” and leave patients suffering unimaginable pain when so many medications exist to lessen such agony.

Thank you to those who are speaking out against the abuse and neglect of chronic pain patients. We have to unite, stand strong, and fight for proper treatment to obtain and/or maintain the quality of life that we deserve.

Share Your Story : Ginny

Thank you to Lisa and her amazing blog http://bloominuterus.com/ for sharing my Endometriosis story and giving other women (aka Endo Sisters) a place to share theirs as well. 🙂

Bloomin' Uterus

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Ginny was diagnosed when she was 31.  Now 37, Ginny lives in Arkansas with her wonderful husband.  Despite this happy ending, she continues to suffer from the pain and effects of Endometriosis, and continues ongoing treatment…and a hunt for answers.

Ginny’s Journey: My first hospitalization for severe abdominal pain happened at age 16. The intensity of the pain and internal bleeding had caused my blood pressure to drop to 70/30 and my body to go into shock. It was the first of many ER visits for similar symptoms but the only one taken seriously enough to admit me to the hospital overnight.

At the time I had never heard of Endometriosis and no one in the hospital nor any of my doctors ever mentioned it. I was diagnosed, or more likely misdiagnosed, with Pelvic Inflammatory Disease, told that my fallopian tubes were full of scar tissue and that I would likely have…

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Press Release : Social Media Endo Challenge

Great idea! Count me in! 😀

Bloomin' Uterus

Coming March 2015

Remember the Ice Bucket Challenge? Come March, be prepared for the Endo Challenge:

By Ellie Friedenberg

January 29, 2015

San Diego, CA – Social media may be getting a bit of a makeover this March as thousands of women prepare to turn their profile pictures yellow. The yellow movement is the catalyst for the “Endo Challenge”, an awareness campaign designed to bring understanding, awareness and education to Endometriosis, a disease that affects 176 million women worldwide.

About The Endo Challenge

Endometriosis is categorized as a chronic pain disorder and is the number-one cause of infertility in women. Despite its crippling symptoms, “endo” is the least researched and least understood disease in women’s health. Due to the lack of knowledge surrounding Endometriosis, many women turn to online support groups to share their knowledge and support one another in finding adequate treatment.

With some groups reaching over 6,000 members, the women decided…

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EndoSisters, ring in the New Year with Hope!

Here is a wealth of great information, which I will reblog to share with my #EndoSister readers and also so I can keep it handy to try some of these items that I haven’t tried yet for myself. 🙂

Bloomin' Uterus

2015 HopeHappy New Year!!!!

And we’re going to start this one off right for my EndoSisters!  I know our medical community has left us feeling neglected, in pain, helpless, or hopeless…BUT there is hope in the non-traditional medical world.  While we continue to wait for modern medicine to find a cure, we can still take steps to help our bodies fight this disease!

For many sufferers of Endometriosis, they have found relief from some, if not all, of their pain through natural methods!  I do not always write about these methods, purely because I haven’t tried them all and cannot offer you my own personal experience…but today I will!

If any of these methods may offer you or I relief in 2015, then it’s worth a try!

And if you have any methods you’d wish to add to this list, please drop a comment below 🙂

Diet Change:

A lot of…

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