I Did It!!!

Yesterday’s endoscopic retrograde cholangiopancreatography (ERCP) was a success! I also had an EGD which revealed no stomach ulcers but the ERCP revealed that I do have I have sphincter of Oddi dysfunction and my pancreatic bile duct was completely blocked so they performed a sphincterectomy, sliced it open and inserted a stent. I had to stay at the hospital all day but they gave me a choice to be admitted or go home with my Mom (since she is a nurse) so I stayed at my parent’s house last night. Continue reading

Guilt & Small Victories

I have felt it on the horizon for days now and, without invitation, it’s here.  The excruciating Endometriosis flare-up that is becoming more and more frequent and is the one thing that I can count on to stop me in my tracks and bring my life to a stand-still for a 3 to 5 day stretch every 4 to 6 weeks.

Don’t get me wrong, the Endo monster is very much present on a daily basis, in one way or another.  However, flare-ups like this are a very different level of agony.

I am celebrating a small victory in the timing of this one, because it just so happened to start yesterday, which was Friday, at about 3:00 pm so it didn’t cause me to miss any work (yet).

At this point, I have made it 5 consecutive weeks without calling in sick.  That may not seem like much to a normal, healthy person but to those who work each day with severe chronic pain, debilitating fatigue, and a plethora of other unpleasant symptoms, making it through 5 weeks of work actually IS an accomplishment. 

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I wanted to share the following link to a fantastic article by Libby Hopton, as featured on Mind Body Green.

If you have Endometriosis, or more importantly, if you have a friend, family member, or co-worker who has it, please take a moment to read this.  It might shed some light on what your loved one is going through and allow you to understand and relate to her a little bit better.

http://www.mindbodygreen.com/0-11318/what-i-wish-everyone-knew-about-endometriosis.html

A Blessing and a Curse

Sometimes God works in mysterious ways.  Over the weekend, my parents delivered an entire week (or more) worth of food; prepared, cooked, and ready to heat and eat.

Here is a photo of our feast, which includes chicken, meatloaf, vegetable soup, lasagna, breadsticks, beef noodle casserole, beans, organic salad, and more.  YUM!  Needless to say, I have been eating a lot more than usual this week, trying to replenish some of the nutrients that my usual poor eating eating habits have robbed me of.

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As I have mentioned before, I often follow an anti-inflammatory meat, dairy, and gluten free diet.  However, this week I will be treating myself to what whatever I want to eat.  Honestly, I haven’t been sticking to my diet in quite a while.  I think it’s OK to stray from the diet sometimes and if someone else is preparing a meal or we are eating out at a restaurant, I typically indulge on whatever I like.

I think my parents worry about Billy and I not eating enough, which is a reasonable worry considering the fact that I’ve lost 35 pounds since my chronic pain became constant.

They also know that both Billy and I battle with such severe pain and fatigue that, during an acute flare-up, simple tasks like cooking can quickly become impossible.  Continue reading