About

My thoughts, stories, struggles, and triumphs as an invisible pain warrior.

b8a14047b98cb78cac86b1be1c03ea0f

Hello and welcome to our blog. I decided to call it Invisible Pain Warriors because that is very much what I consider my husband and I to be.

I have suffered from Endometriosis and PCOS (Polycystic Ovarian Syndrome) for 20 years and was diagnosed 6 years ago and the age of 31, during a diagnostic laparoscopy to investigate the cause of my chronic abdominal pain and infertility.  Since that time, I have experienced a roller-coaster of symptoms, had a 2nd laparoscopic surgery to remove more Endometriosis and pelvic adhesions, and have suffered a significant increase in the severity and frequency of my Endo-related pain.

I also have another source of chronic pain, which isn’t as easily identified, diagnosed, or explained.  I usually refer to it as a “chronic facial pain syndrome” but it has been diagnosed as a number of things, including Trigeminal Neuralgia, Atypical Trigeminal Neuralgia, Atypical Facial Pain, TMJ, and even just a headache.  While no one is quite sure what it is or how to fix it, it has had a dramatic effect on my daily quality of life.

My husband suffers from severe, intractable chronic pain resulting from a failed anterior cervical fusion surgery, which took place in December 2012.  He does not spend much time on the internet and will likely never add to this blog but his battle with chronic pain is something that I will likely write about as it is one of the most difficult and cruel things that either of us have ever witnessed or experienced.

We have both spent many years, thousands upon thousands of dollars, and expended endless time and energy searching for help and resolutions to our pain, but as of yet the medical community has done very little to help us (not for complete lack of trying), short of providing the minimum amount of pain medication necessary for us to function at any capacity.

Our current battles include:

Endometriosis
PCOS
Endosalpingiosis
Atypical Trigeminal Neuralgia
Chronic Pain
TMJ
Cervicalgia
Infertility
Depression
Chronic Fatigue
ADD
Anxiety
Panic Disorder

We will likely post about these topics and many more.

This is a short summary of a very long story, with no end in sight, which I will continue to elaborate on throughout this blog.  I consider us warriors, fighting an invisible battle against a monster that no one can see.  I hope that sharing our story, our struggles, and triumphs along the way can help others who are fighting similar battles to know that they are not alone.

25 Comments

  1. I love your blog so much. I deal with chronic pain from hydrocephalus on a daily basis. I hate when you spend so much time toughing it out and not letting on that no one ever believes you feel anything. It’s so nice to find some solidarity. I write mostly about video games, but they were my solace when I had to spend an entire year at home and in the hospital in high school. Keep writing and giving me something to relate to. 🙂

    Liked by 1 person

  2. Hi there, I am not sure if you “do” blog awards or not… but I have nominated you for the Premio Dardos award. The rules are simple: all you need to do is nominate 15 blogs, nice and easy. Here is the link to the post: http://wp.me/p4Do1g-u4. I hope you will accept it, but if not… nevermind, I still like your blog and this is a token of my appreciation!

    Like

  3. Hi Ginny,

    I’m writing to tell you that your post Working with an Invisible Illness & Chronic Pain (https://painwarriors.wordpress.com/2014/09/14/working-with-an-invisible-illness-chronic-pain/) is absolutely spot on! We’d love to feature it on our MyEndometriosisTeam blog if you don’t mind us republishing (we’d include your bio/your byline, link etc).

    Your writing is so genuine. “These are just some of the physical symptoms. The psychological and emotional symptoms are another monster all their own.” <— our readers can relate! 🙂

    We are starting a guest blogging series to bring hope, understanding, and encouragement to people living with Endo. We would also share on MyEndometriosisTeam.com and on our social media channels.

    We just launched MyEndometriosisTeam.com 2 weeks ago and it's growing by hundreds of people per day! If you're already on MET, can you let me know your username? That way I can feature you AND the blogpost.

    Have a wonderful day,

    Michelle M
    Social Media Manager
    michelle@myhealthteams.com

    Liked by 1 person

    • Hi Michelle! Thank you so much for your kind words. I am really glad that you enjoyed the post. It is definitely a topic that affects so many of us on a daily basis. I am in the midst of a bad flare up now and dealing with the guilt of having missed the past two days of work. Of course that will result in a backlash of having to work extra hard to catch up, while still struggling to come out of a bad flare up and a very tough week. I would be honored to participate and become involved with MyEndometriosisTeam.com. Please feel free to share any of my posts or relevant information. I will visit MET now and register so I can share my username. 😊

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s