The Loss of Lifetime Love

Tonight we are visiting with a friend who stopped by, out of the blue, to let us know that his wife passed away this morning. It was unexpected. She suffered from chronic pain, but nothing that was considered life threatening, until now.

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It sounds like this condition had been affecting her for quite some time and progressed undiagnosed until it was too late. 😢

I have a very hard time comprehending situations like this one. I can’t imagine the pain that he will feel when the shock wears off.

I couldn’t do it. I wouldn’t survive. Continue reading

When I read this, I almost felt as though I had written it myself, or if it had been transcribed from my own thoughts. I believe almost every person suffering from an invisible, unmanageable, chronic illness has felt this way at some point. It shouldn’t have to be this way and, in a both comforting and tragic reality, we are not alone.

Indisposed and Undiagnosed

I’m having a rough month.
It could go well into two or three months.
I have tried everything, everything.
I feel like I’m back to square one with the symptoms that haunted me at the beginning.
I visited my Gastroenterologist, after his month vacation, and told him that I’ve lost the five kilograms I put on, am in excruciating stomach pain, have constant nausea and am not responding to any medication.

I am tired.
I am tired of going backwards.
I am tired of telling him that I’ve gone backwards.
I am tired of explaining to people why I am “still sick”.
I am tired of being the guinea pig for a range of medications that are not making me feel any better.
I am tired of being told that I have this stomach disease, but am unable to manage it.
I am tired of my body being so fragile.

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ELDER ORPHANS; WILL YOU BECOME ONE?

I think about this A LOT. Likely WAY more than would be considered healthy. I had no idea there was a word for it but I’m glad that the situation is finally being discussed and acknowledged.

The truth of it is that either my husband or myself (probably the latter since my hubby is 7 years older) will definitely become an elder orphan.  

Why? Because I am a 38 year old, childless, only child with infertilit, chronic illness, and very few close friends or family members.  My husband is a 45 year old, childless, youngest of 4 much older half-siblings, all of whom are estranged from him except for one, who is quite a bit older and not close at all (we are lucky to see my sister-in-law once every 5 years).

The very thought of the either of our deaths terrifies me more than almost anything, other than the death of my parents, which I can hardly accept will ever happen.  Yet fearing my own death is less a fear of experiencing death itself than a fear of my husband and souli-mate being left alone.

I sincerely hope that social programs or assistance have been put in place soon, as countless senior citizens surely struggle with this fear and reality.  No one should have to live through the terror of growing old and suffering through failing health, dementia, aging, and dying scared and alone.

Sheri Lawrence de Grom

Medicare/Medical 2015
by – Sheri de Grom

What are the chances you’ll become an elder orphan? Are you 65 or older, without children and alone?

No one knows exactly how many individuals fall into this newly-created medical care category. The theory is that 25% of all Americans over age 65 are at risk of becoming elder orphans or should already be classified as such.

This vulnerable population already exists, but they have no voice or support system. Elder orphans must have advocates. However, their needs must be defined first.

We do know elder orphans are aging alone, with no known family member or designated surrogate to act on their behalf. It’s imperative we determine which community, social services, emergency responses and educational resources can help them.

This population is growing as society ages and life expectancy increases.

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The University of Michigan conducted an extensive survey…

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A Whiter Shade of Pale : Cover by Black Label Society

Since it’s WAY past my bedtime, thanks to chronic illness and pain (with a special shout out to my dysfunctional pancreas and Sphincter of Oddi Dysfunction) I might as well share some good music. 🎸🎶🎤

I 💜💖💜 this version of A Whiter Shade of Pale.

Zakk Wylde / Black Label Society definitely do this classic song justice. I think Procul Harum would approve. 😊

What Is Endometriosis?

Most people think of endometriosis more or less as a synonym for bad menstrual cramps, but the condition is more serious than that. It involves tissue from the uterine lining implanting itself outside the uterus.

The condition affects 1 in 10 women.

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“Endometriosis reaches far beyond the uterus by sneaking up the tubes or through the blood or lymph systems. It goes other places like cancer, and because it’s the body’s own material, it’s not rejected,” said Dr. Tamer Seckin, a gynecologic surgeon who co-founded the Endometriosis Foundation of America.

“People are committing suicide because of this, because it’s not recognized and there are no good treatments and people get blown off,” said Dr. Peter Gregersen, a geneticist with the Feinstein Institute for Medical Research in Long Island who is researching endometriosis.

Continue reading this Healthline article here: http://www.healthline.com/health-news/personal-painful-ordeal-of-women-with-endometriosis-061815#5