I love this post! It resonates with me on so many levels. I really admire how quickly this Endo Sister has managed to work through some of the hidden (and some more obvious) struggles of chronic illness. I received my official Dx of Endometriosis at about the same time (maybe a year or so earlier) but it took a 2nd source of chronic pain (Atypical Trigeminal Neuralgia) and my husband’s cervical spine injury for me to really start to acknowledge, delve into and research our limitations and start searching for answers. I think denial took over in the early years after my Endo Dx, as well as my doctors failing to explain to me that the disease has no cure.
I successfully made it through this past work week without using any sick leave, missing any days, coming in late, or adjusting my schedule for doctor appointments, etc. This is a BIG accomplishment for me, but may seem trivial to healthy peers. In doing so, my body has been left in a terribly drained state. The dreaded Endo Fatigue has hit me hard today and I feel as though I’m walking through quick sand. I over-did things this past week and I am paying the price now. I need to learn how to better manage what little energy that I do have and this post reminded me of that fact.
I also thoroughly agree with the importance of managing our mental health along with our physical health as part of our pain management program. I am always shocked at how my (and my hubby’s) pain specialist ignores this critical element which impacts us both so much. I am definitely going to check out the link provided in this post to see if there are any sources of help available to US citizens. ❤
On any given day I always have too much to do. There are more things to accomplish than I have hours of the day.
This was a problem for me before I got sick, but well people aren’t always forgiving about illness, but doubly so when they want work from you or expect you to meet certain commitments. People get stressed themselves and their expectations and demands grow. Basically people forget you’re ill and expect you to do as much as everyone else.
Being busy with a chronic illness is a nightmare. You have half (or less than) the energy of other people. You’re in pain all the time and you have to manage everything that life requires.
There’s no perfect solution to being busy and stressed, but the being busy while ill part? I might be able to help a little.
View original post 2,527 more words