Press Release : Social Media Endo Challenge

Great idea! Count me in! 😀

Bloomin' Uterus

Coming March 2015

Remember the Ice Bucket Challenge? Come March, be prepared for the Endo Challenge:

By Ellie Friedenberg

January 29, 2015

San Diego, CA – Social media may be getting a bit of a makeover this March as thousands of women prepare to turn their profile pictures yellow. The yellow movement is the catalyst for the “Endo Challenge”, an awareness campaign designed to bring understanding, awareness and education to Endometriosis, a disease that affects 176 million women worldwide.

About The Endo Challenge

Endometriosis is categorized as a chronic pain disorder and is the number-one cause of infertility in women. Despite its crippling symptoms, “endo” is the least researched and least understood disease in women’s health. Due to the lack of knowledge surrounding Endometriosis, many women turn to online support groups to share their knowledge and support one another in finding adequate treatment.

With some groups reaching over 6,000 members, the women decided…

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FurBall Friday : Brach is NovaCat’s Hero

I woke up yesterday morning to our dog (aka moose) acting very strange.  He kept looking at me, jumping up in the window, wincing, and running around the house.

I couldn’t figure out why our normally calm pooch was acting this way so I began looking around the house for anything strange.

I soon found our eldest kitty, The Bitty Bit, curled up on her favorite spot; the warm dryer, while my clothes were fluffing for the workday.

Not long after, I noticed that our other kitty, NovaCat, was no where to be found.  I called for her over and over to no avail.
Continue reading

I’m supposed to get a massage at 1:00 pm today.  I’ve been looking forward to it for days.  It’s one of the only things that eases my Atypical Trigeminal Neuralgia pain which seems to originate in my neck from Degenerative Disc Disease, or so my pain specialist believes.

I had to miss work yesterday and don’t feel any better today.

I woke up to a stabbing, tearing, ripping pain in my lower left quadrant.  It feels like my ovary is stuck to my lower intestine and my GI doctor said it probably is, from either Endometriosis or scar tissue and adhesions.  Now I’m dealing with the gastrointestinal consequences and it sucks.

The fatigue takes my breath away.  When they say that Endo can cause fatigue as severe as that experienced by those with end-stage cancer, they are not kidding.  It is real.  I can barely move.  I have no idea how I’m going to take a shower, shave, and get ready for this massage.

Stress levels may affect Endo

This is very true. I’m in the middle of a stress induced pain flare-up right now.

I was blessed with an almost cruel but wonderful lower pain level last week as I felt much better, physically and mentally, than I have in years. I had almost forgotten what it was like to feel even semi-normal but as quickly as it arrived, in a flash, it was gone. I would’ve almost preferred that it not happen because it was a painful reminder of the life I have lost.

This week has been very stressful, with a worsening of my husband’s condition, additional doctor appointments and an expensive skin biopsy for me, and all of the stress that comes along with it.

Each day, my pain and fatigue levels have increased and they came to a peak today, which required me to call in sick from work, which will inevitably have a domino effect of more stress caused by the guilt that I feel when I have to use sick leave which I can’t afford to lose along with the back-log of work that will be waiting for me when I return on Monday. It is a never-ending vicious cycle that wreaks havoc on my body and mind.

I’m going to try to mitigate and interrupt the cycle with a massage at the local massage school this weekend and maybe even a cheap hair trim and eye brow wax at the local beauty school. I’m jokingly calling it a white trash spa day. LOL! No offense to anyone who takes advantage of similar price reductions. When chronic illness destroys your finances, as it has ours, student services are a blessing and the only way that I can afford any “me time” or be pampered at all. Hopefully I will feel a little better by tomorrow so I can enjoy the day and avoid cancelling at the last minute. Such is life with an invisible illness. Living day by day, hour by hour, and minute by minute becomes normal.

💖 Wishing you all a low pain level day 💖

Bloomin' Uterus

StressSymptomsSo after a particularly stressful day at the office, I decided to do some writing and soul searching and (of course) research.  In all of the books and articles I’ve read, there has been a comment or chapter stating that stress may worsen Endometriosis.  But why?

How Stress Affects the Body:

Stress may trigger adrenal stress hormones, which may alter heart rates and blood flow.  It may also impair our white blood cell count, which can lower the body’s chances of fighting infection, reduce inflammation or even prevent/limit scarring. Gals with Endo know that inflammation and scarring are two critical components of a painful Endo day.  Stress may also cause or exacerbate problems such as headaches, high blood pressure, heart problems, stroke, diabetes, skin conditions, asthma, arthritis, depression, and anxiety.

Science!

In 2008, news reports state a study was conducted on seven female rats.  A team of investigators concluded that…

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Suicide Via Social Media

This is a great post with important information and resources for a serious and all too common problem which affects not only women with Endometriosis but also millions of other people who suffer from invisible illnesses and/or undiagnosed, untreated, or under-treated chronic pain.

My Sexy Endo (The E-word)!

Sadly, this has been the most active suicidal time in recent history that I can remember, for women suffering from Endo. Personally, I have taken more than five calls and we have lost as many women that I know of in various communities throughout the Country in the last three months alone. It is alarming and brings to light that not only are these women being under served, the medical community in general, is ill-equipped to handle the situation. After all, there were no training sessions that I can recall, on handling the suicidal person on Facebook. This is where I encountered all of them. Facebook didn’t exist when I was in nursing school or college. It is a powerful tool and can reach the sub groups of the Endo communities within minutes.

Such is the case of this one. This poor gal reached out and within a matter of…

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Gluten Free Apple Pie Bars

I’ve been working on my new year resolutions, little by little, and since one of them includes a transition back into a more endo-friendly, anti-inflammatory diet, I’ve been looking for (and trying out) some simple, healthy and tasty recipes.

I wanted to share this one, courtesy of Food Fanatic, that I used last night to fulfill my sweet tooth.  They turned out a little crumbly but tasted great.  😀. I substituted coconut oil for canola oil and a different gluten free flour for almond flour. Continue reading

I stumbled across this wonderful blog post.  It really hit home for me, as a woman who has been fighting, grieving, and living with infertility for what seems like a lifetime.  Well, I guess it has been, literally, my lifetime.

I Could Have a Baby but She Could Not

Wishing you all a low pain level day.

💙💜💙 Invisible Pain Warriors 💜💙💜