The NeverEnding Story

I must once again apologize for my random absences, missed weakly features, and sporadic posts.  Since our main topic is chronic illness and pain, I am confident that our followers can relate to and sympathize with my recent occasional bouts of being bedridden, feeling incapacitated, sick, in pain, and unable to post as frequently as I would like or had planned.

My editorial calendar is filled with interesting, educational, and helpful topics which would better appeal to the masses but my rather unexpected and new health issues which have developed over the past few weeks have taken center stage and caused my blog to take on more of a diary format for the moment.  I am going with it for now, as I find it helpful and supportive to share our individual journey, as well as other topics along the way.  Some periods of time may lean in one direction more than the other but our goal remains the same.

During my last update about my current GI journey, I believe I shared and explained some complications or side effects that I experienced for several days following my recent ERCP and pancreatic bile duct stent placement.

My gastroenterologist, despite him being highly skilled and me being forever indebted to him for most likely saving my life, seemed to be lacking in the area of follow-up care after the ERCP procedure.  I was never given a follow-up appointment and did not know exactly what would be found or done during the procedure, which obviously will have an effect on a patient’s recovery.  The issue of follow-up care has since improved but at the point in my journey which I’m describing here, that is very much how I felt.

I believe I spoke with both my doctor and another GI specialist (the latter two, three, or more times) after I woke up but we all know how the side-effects of heavy sedation or anesthesia can affect eliminate your memory.  I have no recollection of speaking with my doctor and only remember two out of the three (or maybe four) times that I spoke with the GI doctor on-call at the hospital.

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Thanks to “painsomnia” I am awake in the middle of the night so I thought I would report on a slight recovery set-back.

I was doing okay, eating/drinking clear liquids, until today.  Well, actually I ate half a bowl of tomato soup and two crackers last night without incident.

I guess having not eaten (except liquids) in 72 hours caught up with me because on a whim I decided to eat half a bowl of potato soup followed by about half a bowl of Moosetracks 🍦 ice cream 🍦.  I only have one word for this choice – MISTAKE! Continue reading

Dead at 27

Bloomin' Uterus

26s16-emilia1-667__mngl_20120126ab5x018,nyh_1.indd_1658 Emelia

A Swedish friend of mind sent me an article about a Swedish gal, Emelia, who died in 2011 due to complications of Endometriosis, and (more importantly) the neglect of her physicians.  You can read it here, but unfortunately it’s all in Swedish.  Google translate gave me the gist of it (which you can read here).

Emelia was diagnosed with Endometriosis when she was 21 years old, among the usual places it was also found on her intestines.  In 2010 (she was approx. 26) she had been suffering from severe constipation (sometimes for periods of up to 10 days) which we well know is a symptom of Endometriosis.  Over the next nine months, Emelia saw 32 different doctors. That’s right…thirty-two.  Nobody could resolve her constipation, symptoms, or her pain. She sought referrals to an Endometriosis Clinic at the Uppsala University Hospital in the hopes they could help.  But…

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I Did It!!!

Yesterday’s endoscopic retrograde cholangiopancreatography (ERCP) was a success! I also had an EGD which revealed no stomach ulcers but the ERCP revealed that I do have I have sphincter of Oddi dysfunction and my pancreatic bile duct was completely blocked so they performed a sphincterectomy, sliced it open and inserted a stent. I had to stay at the hospital all day but they gave me a choice to be admitted or go home with my Mom (since she is a nurse) so I stayed at my parent’s house last night. Continue reading

Well, I made it through the first day of another three day work week. Sadly the extra two days off this week are not for a holiday or fun time off but for a rather risky medical procedure.

I will likely be missing my division’s Christmas party at work. Since I can barely eat without severe pain that is probably for the best anyway, although I will miss the White Elephant gift exchange. 😉

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